Superior Mesenteric Artery (SMA) Syndrome isn’t very common, but what is common is that the majority of doctors in the US either don’t know what it is, how to treat it, or simply think it’s not a clinical entity. For someone suffering from this condition it can be a very isolating and terrifying situation to be in.
I had symptoms of SMA Syndrome beginning at the age of 15. I was diagnosed at the age of 32 and finally had corrective surgery when I was 37 years old. I was extremely lucky. Not many people alive can say they had a bowel obstruction for that many years. In fact, there aren’t even decent statistics to provide that show the prognosis for this condition. Some statistics say 33% will die, some say zero or 6.3%. These numbers are so drastically far apart that none of them can be truly relied upon. The same goes for treatment options.
More information about SMA Syndrome can be found on these sites:
- US NIH – https://rarediseases.info.nih.gov/diseases/7712/superior-mesenteric-artery-syndrome
- Facebook groups linked to within this article.
- Wikipedia – https://en.wikipedia.org/wiki/Superior_mesenteric_artery_syndrome
- Medscape – http://emedicine.medscape.com/article/932220-overview
Footage from the show Mystery Diagnosis about SMA Syndrome:
To see a list of medical professionals who do recognize SMA Syndrome as a clinical entity and have had success in treating it, CLICK HERE (currently in process).
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